Sunday, June 19, 2011
This journey of grief
I thought I was doing ok with this journey of grief, I made up Harrisons Little Wings Inc to help me grief. I love his charity as I can talk about him everyday and no one thinks it is strange. I sit for days, for hours making up special albums for other families, because this just makes me feel better, knowing I can hold the hand of another family in my craft that I love so much. I just didn't start Harrison's charity for the glory, I started his charity, because after losing Harrison I had this overwhelming need to help families. I thought about what I was good at, and what I loved, and the only thing I could come up with was scrapping. So there my vision for Harrisons charity grew. I never realised in this charity world could be so cut throat, I never realised that if you were onto a good thing someone would want to come and take your ideas. I just want to do a special thing for families that have lost a baby. My albums aren't just a few pages, they are filled with 20 layouts. 20 layouts of love. So much time and love has been put into them.
I have been sent some emails (not sure how they got my email address) with this company called 'Cherubs' they are the support group of the condition Harrison died of. Cogenital Diagphragmatic Hernia (CDH) I haven't signed up with them as I found that really hard seeing photos of survivors of the condition, because I look at those photos and it makes me sad, it makes me want that for Harrison. That is what I thougth my journey was going to be like. But never the less, they got my email address as they are in the running for a massive donation from a company and are relying on votes from the public. So I have been getting on every day, as I do want research done on CDH so that it doesn't claim the life of another baby. The medical industry do not do alot of research on this condition as they don't consider it to be a massive 'killer'. Where Harrison was born in the Mater they get about 10 babies a year born there with Harrison's condition out of 50 000 babies born. So this money to be given is just a huge amount to go to research. They send emails out every day to remind you to vote, and today was about a little baby who was fighting for his life, he had numerous operations, but he survived and was home with his family. It makes it really hard reading stories like this. This was what I thought my journey was going to be with Harrison.
I have met some really lovely people lately. One family has a similar story to mine, there little boy lived longer then Harrison, but our pregnancies were very similar. It has been so nice talking to her, and relating to her journey.
I have also met another family that is just at the beginning of there journey, they have just found out there little boy is sick. It breaks my heart to hear their story and the long hard road that is ahead of them.
You kind of think you are going ok with this road of grief but then you hit a speed hump, and there seems to be alot of them on this road. That speed hump for me is those emails. I am torn because I so desperatly want them to do more research so another family do not have to go through what we went through, but I don't want to hear survival stories. My son didn't survive. A part of me thinks that is more the reason for your research. That may be selfish, but I am going to have my selfish moment. It is babies like him that I won't research done so they don't die. those families have their baby, they get to see them smile they get to hear their baby cry, they get to see their baby with their eyes open. I was robbed of hearing Harrison cry, I was robbed of seeing his little eyes open due to this cruel horrible condition. I had to see my son fight for his life, and watch him lose that battle, that is why they need that money.
Oh God, I miss him so much, there isn't a day that goes by that I don't think of him. Life gets busy, and yes life goes on, but there are always those quiet moments in the day when you are driving or when you are laying in bed trying to fall asleep and it is those moments that are filled with thoughts of Harrison.
Harrison my sweet little boy, there is this gapping hole, and sometimes you think that gap is being filled and it takes one little thing to rip it apart, and that void of missing you, and the love that I feel for you, I can't begin to be expressed. I can hug your brothers and tell them that I love them. I can bake cakes with them, I can kick a ball around with them, but how do I express my love for you??? How do I get to tell you that I love you?? I pray that God up there whispers that in your ear. Mummy loves you and misses you. Love Mummy